A local 4-year-old was recently in the spotlight at New York Fashion Week, where she rolled down the runway to model adaptive fashions.

Estelle Lemieux appeared as one of 60 models on the “The Runway of Dreams,” which is a one-of-a-kind adaptive fashion show, aptly titled “A Fashion Revolution,” presented by Kohl’s. The seventh annual show was held on Sept. 12 at The Glasshouse in New York City.

“It was such an eye-opening experience for her. She has never been exposed to so many people with all different types of disabilities/differences. I definitely think it has helped her to understand and accept her disability/wheelchair,” said Amy Lemieux, Estelle’s mom.

Estelle, the daughter of Amy and Douglas Lemieux, has Spinal Muscular Atrophy, type 2. She started showing symptoms at around 6 months of age but wasn’t diagnosed until she was 16 months old, as it took a long time to get the correct diagnosis.

Lemieux said her daughter has been lucky to receive all three FDA-approved treatments for the neuromuscular condition, including the most expensive drug in the world called Zolgensma at a cost of $2.1 million for a course of treatment. She also takes daily medication and gets therapies to help build muscle and fight against a disease that is historically progressive without…